Finding Supportive POTS Providers
We want to first apologize on behalf of the medical community as a whole because it is frightening how many in our community are unable to access providers who understand POTS, believe that POTS is real, understand common co-occurring conditions, know how to test for co-occurring conditions, and who have the tools needed to help.
This leads to a significant amount of pain, dismissal, medical trauma, and diagnostic delays for our community. This is also painful for guardians or other family members/friends who desperately want to get their loved ones the care they need and deserve to see them thriving again.
Although the number of providers who are familiar with POTS and other more commonly seen co-occurring conditions is increasing, there is still a significant amount of work that needs to be done, and a great deal of room for improvement.
Helpful Provider Lists And Additional Options
Although we can’t speak to each provider individually, the best provider lists we are aware of can be found through the Dysautonomia Support Network (specific to the United States), and Dysautonomia International (with lists of providers internationally).
Other options can include joining support groups through the Dysautonomia Support Network and Dysautonomia International specific to your location, where you can ask a larger community which providers in your area they have seen and ask about their individual experiences with each.