Hypermobility Spectrum Disorder

Individuals who do not fulfill the criteria for Hypermobile Ehlers-Danlos Syndrome (hEDS), but have a symptomatic hypermobility-related condition, are diagnosed with Hypermobile Spectrum Disorder (HSD). To see more information about hEDS, click here. If you experience joint hypermobility, please know that you are not alone! Joint hypermobility is actually quite common, as up to one in five in the general population will have localized or generalized hypermobility.1,2

Although there is no current cure, treatment options are available and are important for providers to be aware of to increase accessibility. Having an accurate diagnosis is vital so that your medical team knows and understands the root cause of your symptoms. Your quality of life can be improved with this knowledge. We will be developing a handout that you can print and bring to appointments with you if providers are unfamiliar or not aware of what to look for - we will make an announcement when this is available!

Sources:

1. Bloom L, Byers P, Francomano C, et al. The international consortium on the Ehlers-Danlos syndromes. Am J Med Genet C Semin Med Genet 2017; 175:5.

2. Miklovic T, Sieg VC. Ehlers Danlos Syndrome. [Updated 2022 Jun 9]. In: StatPearls[Internet]. Treasure Island (FL): StatPearls Publishing; 2022 Jan-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK549814/

Helpful Link

For more information about HSD as a whole: