Supportive Accommodations

Supportive accommodations can help increase daily functioning and the ability for individuals with POTS to attend various events and gatherings. It can also increase their quality of life and comfort. Although the list below is not all-inclusive, we do hope that it provides you with some helpful options and suggestions.

  • Offering indoor options (ideally with air conditioning) when it is warm outside, if they are sensitive to the heat.

  • Offering places for them to elevate their legs/feet when sitting.

  • Inquiring about food restrictions is important because many people in our community have significant dietary restrictions.

  • If holding an event, ensuring there are non-alcoholic options given how sensitive many in our community are to alcohol.

  • Choosing places to visit that are wheelchair accessible if available (you can call ahead to confirm).

  • Taking more frequent sitting breaks when out, and being mindful of their need to rest and hydrate more often.

  • Providing flexibility when it comes to making plans, as often the ability to foresee symptoms or how they may be feeling on a given day may be challenging.

  • Taking additional precautions to reduce your exposure, and their exposure, to respiratory viruses. This can include you wearing high quality masks when in indoor settings and crowded outdoor settings such as n95 masks.

  • Offering virtual alternatives to attending events which may make it easier for them to attend and feel included.

  • Planning activities that reduce exertion may be helpful, depending on their symptom severity.

  • If they have MCAS, please ensure to ask about triggers and sensitivities to smells and chemicals, such as perfume, cleaning products, or scented candles. Ensuring these are not present at events or when meeting can be extremely important.

  • If they have MCAS, ask if they have sensitivities to flowers. There may be certain flowers that are more triggering than others (some have more pungent smells or produce more pollen), so being mindful of this can be helpful.

  • Carrying heavy items for them, like groceries, and perhaps other bags.

  • Making changes to their living space that allows for enhanced accessibility. Learn more about various mobility aids by clicking here.